By Anita Ortega


Parents, especially mothers normally go through a lot when their children suffer from a complicated disease. Cerebral palsy is an example. It rids the child of motor control and may lead to permanent brain damage. Such children if not assured that they are still human beings, if they are not treated like the other kids, they will feel demoralized as they grow up. It is therefore necessary to set up cerebral palsy support groups for parents.

Such a team makes it possible for the parents to receive assistance since they meet others in similar situations. Their psyche is lifted by the realization that they do not sail in this leaking ship alone, and that the opening can be blocked for the ship to reach safely ashore. With the help of therapists, they learn about massage techniques that greatly reduce the symptoms. As a result, the frequency of attacks significantly reduces.

With determination, starting is not hard. If you are a parent with a child suffering from this condition, you are bound to meet others when you go to the hospital. What about sharing with them the need to come up with an organization? You never know, you might be surprised to realize this is what most of them actually needed.

Another way is to join a group that has already been formed. However, it would be better if it comprised of parents from the same neighborhood. This way, regular meetings will be possible to chart the way forward. There are many who suffer in silence and for fear of shame, they keep the children indoors with no medical attention at all. Others also lack the funds to meet the huge financial requirements of treating such a disease.

Every time you converge, share your fantasies, fears and other experiences. Plan how the challenges of each one in the union can be dealt with. One might be willing to help the child but money becomes a problem. With support from the association the child can definitely get treated, since it easier to seek funds from the society as a group than as an individual.

Upon registering the group, donations can be sought in several ways. Most churches or even mosques offer humanitarian aid. The government health kitty can also be explored. Also set a web page for the whole world to know about the group and factor in their support in any form.

Your organization will attract members of all walks of life. The majority will be affected parents. You will also have health practitioners who are interested in carrying out research in this area. The clergy and politicians might also want to associate with you since they want to appear supportive to community projects. Other people might join out their sympathetic hearts.

Seminars, parties and similar events work well in creating awareness. They also go a long way in informing the masses that something great is in the offing. The platforms created therein become sufficient for agitating for the rights of these young ones whose futures are exceptionally bright.




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