Details Regarding Sickle Cell Charities For Kids

By Jocelyn Davidson


Sickle-cell disease or sickle-cell anemia are names tied to a hereditary blood disorder found in humans. Both SCD and SCA, respectively, involve red blood cells that have become rigid, abnormal and are shaped like a sickle. This sickling of cells is what reduces their flexibility and therefore heightens the risk of persons dealing with life-threatening problems. This problems is caused by mutant genes that produce both normal and abnormal hemoglobin. Sickle cell charities for kids are in operation around the globe and used to raise funds to help with medical treatments and research for those who suffer with this hereditary condition.

People with this condition are known to have a shorter life than those without. The life-expectancy age for men or women with this condition used to be only 50 years old. Now, there have been advances in management, knowledge and technology that have increased the life expectancy. Patients with this have lived well into their 70s and sometimes beyond.

These kids charities often raise funds so that more medical studies and research can be done. They are also used as a platform to bring about awareness, as this disorder afflicts a lot of people. This might also include teaching sufferers about this condition and the many solutions available to them for management.

A lot of complications can come with SCD. People with this are at a heightened risk of bacterial infections, opiod intolerance, osteomyelitis, cholelithiasis, decreased immune system, ulcers on the legs, stroke, acute papillary necrosis and more. Most of these issues can be prevented. They can also be healed with proper care and healthy lifestyle choices. Numerous options are available for managing this disorder, such as: hydroxyurea, bone marrow transplants and transfusion therapy.

Charity donations can be used for many programs and benefits. Typically they are put toward providing the public with information, supporting research in medicine, professional education, and advocacy. It is important to research the charities before donating to ensure they can be trusted and money is directed to the right source. Most of these groups share the goal of finding a cure for this inherited disease.

The first recording of this condition is believed to come from an autopsy report that dates back to the 1800s. The 1900s was a time in which more people in different areas of the world were being seen with this problem. Nowadays, this afflicts all types of people. However, it is more commonly seen among those who derive from East India, Africa, and Mediterranean or Middle Eastern regions.

The diagnosis process is usually done at birth through a blood test common of newborn screenings. Kids testing positive will be given another test, hemoglobin electrophoresis, to verify the diagnosis. Those who have this disease are more likely to get infections and other medical complications, which is why early diagnosis and management is essential.

Kids should receive regular care and attention from a doctor, as well as a hematologist. There are certain clinics that deal only with sickle-cell patient care. Health education is a must for these children as they grow up. Charities strive to provide sufferers with helpful resources, while still raising funds to put toward finding a cure.




About the Author:



0 comments:

Post a Comment

top